Hey beauties! I hope you are all keeping well 💖 Sometimes it still hits me that we are living on a narrowboat. At the weekend my dad popped over to see us and has kindly offered to service our engine. Just like a car, it’s good to get them serviced regularly. My dad has been … Continue reading Our home has an engine!
Hi beauties! 💖 I hope you have all been keeping well? So I have been rather quiet recently as I have been having a big flare up and helping my mum whilst she recovers from her op. As you maybe aware, I have been having a lot of cardiac investigations recently. Echocardiogram, 24hr tape monitor … Continue reading It’s been a while!
I hope everyone is keeping well with this weather we are having?? I honestly have struggled with this, my heart rate is all over the place and the boat is hotter inside than outside lol! Continue reading Preparation, preparation, preparation!
This weekend just passed, we took my best friend out on our floating home for a weekend away to see the scenes of the River Nene and spend some quality time together before she starts her new exciting job. Continue reading The aftermath of fun
This month is #EDSAwarenessMonth. I will not forget the other conditions that suffer with similar issues to this however. There are many conditions that have the same problems with hypermobility. Hypermobile EDS is the main condition I suffer with and there are MANY other conditions that have heritable disorders of the connective tissue. Continue reading #EDSAwarenessMonth amongst others
So the narrowboat adventure has started. I will be going through the 4 days of travel we did to get the boat to it’s home mooring and final destination! The first day we started off where we had bought it from which was Braunston Marina. This journey for us if you are travelling bu car … Continue reading The Narrowboat adventure…
Friends and family and chronically ill Continue reading Chronic illness and life
Dear readers, Today’s subject is very close to my heart. Everyone has fears, some maybe about spiders and some maybe heights. Mine is about my condition and if it get’s worse or what will happen to me when I get older. Being 32 and already having so many issues does play on my mind for … Continue reading Fears of my condition
Leaving work due to ill health Continue reading Last Day
My latest #blog post. About the decision to leave work Continue reading Decision time
A Bendy Lady 