What is EDS?
Ehlers-Danlos Syndrome is the name of a rare hereditary disorder of the connectrive tissue (HDCT).
Connective tissue provides support to the skin, tendons, ligaments, blood vessels, internal organs and bones. There are several types of EDS. Mine is classified as Ehlers-Danlos syndrome – hypermobility type or EDS-H for short.
The universal symptoms are:
People with EDS-HT may have:
- joint hypermobility
- loose, unstable joints that dislocate easily
- joint pain and clicking joints
- extreme tiredness (fatigue)
- skin that bruises easily
- digestive problems, such as heartburn and constipation
- dizziness and an increased heart rate after standing up
- problems with internal organs, such as mitral valve prolapse or organ prolapse
- problems with bladder control (stress incontinence)
Ehlers-Danlos syndrome is something we ‘bendies’ have to learn to live with. Day-to-day management of the condition is extremely important. This can include pacing, pain management, gentle stretching, gentle exercise, heat packs, TENS machine, splints, orthotics, walking sticks, crutches, wheelchair, physiotherapy, CBT, occupational therapy and more.
It’s a complicated life but with proper management of the condition, we can learn to live with it’s daily struggles of chronic fatigue and pain.