So the narrowboat adventure has started. I will be going through the 4 days of travel we did to get the boat to it’s home mooring and final destination! The first day we started off where we had bought it from which was Braunston Marina. This journey for us if you are travelling bu car … Continue reading The Narrowboat adventure…
Dear readers, Today’s subject is very close to my heart. Everyone has fears, some maybe about spiders and some maybe heights. Mine is about my condition and if it get’s worse or what will happen to me when I get older. Being 32 and already having so many issues does play on my mind for … Continue reading Fears of my condition
Leaving work due to ill health Continue reading Last Day
My latest #blog post. About the decision to leave work Continue reading Decision time
Good evening readers, Today I wanted to blog about communication and the tools that we can use to help others understand. Having an invisible illness, it can be very difficult to communicate to others how we are feeling or how much pain we are in. Overtime, I have been fortunate enough to have very understanding … Continue reading My communication tools
Good evening readers! I hope this post finds you all well or as well can be? I have been feeling pretty crud this week and today my PoTs symptoms took a horrible turn. The heating broke down again to top it off lol! Even with all this going on, my little furbaby makes me smile. … Continue reading Furbaby love ❤
Hey Readers, I hope this blog finds you well? Today my husband is back at work after a great week off. I am still off work for another week so the building work can continue. My lovely mum brought lunch round for us in the form of KFC. Very naughty but very yummy! Thanks mumma … Continue reading Adaptive cooking
Hey readers, This last week has been the most difficult in a while. Not necessarily from a pain perspective, although that never helps. Just from the sheer inconvenience of not having a functioning bathroom! On Monday I took my dog Lilly to the vets for her boosters and then we went onto the Kennels. We … Continue reading Bathroom refit and it’s taking it’s toll
So mine and my husbands main plan for this year is to sell the house and buy a liveaboard Narrowboat! Sounds a little extreme but it really appeals living life in the slow lane. Continue reading Narrow boats, disability and life in the slow lane
So this week has been a trying one. I had an emergency GP appointment after having feeling nausea, dizziness and having palpitations on Monday. I called the NHS 111 service and they were concerned with my resting heart rate. I have been told that it’s extremely likely I have PoTs from an EDS specialist in … Continue reading Postural Orthostatic Tachycardia syndrome (PoTS) and a Birthday!
A Bendy Lady 