This, amongst other questions are very difficult to answer. The usual answer you will get from me is ‘I’m OK thanks’. This doesn’t even come close to how I am but is the quickest and easiest answer I have. Living with pain and fatigue everyday is so difficult for people to comprehend. I do have … Continue reading How are you feeling today?
I hope everyone is keeping well with this weather we are having?? I honestly have struggled with this, my heart rate is all over the place and the boat is hotter inside than outside lol! Continue reading Preparation, preparation, preparation!
A few weeks ago, I had a pacing masterclass with Jo Southall who is an amazing Occupational therapist. Jo herself is a fellow bendy too, so she just gets it. I cannot rate her enough. Continue reading Pacing, a life style change
This weekend just passed, we took my best friend out on our floating home for a weekend away to see the scenes of the River Nene and spend some quality time together before she starts her new exciting job. Continue reading The aftermath of fun
This month is #EDSAwarenessMonth. I will not forget the other conditions that suffer with similar issues to this however. There are many conditions that have the same problems with hypermobility. Hypermobile EDS is the main condition I suffer with and there are MANY other conditions that have heritable disorders of the connective tissue. Continue reading #EDSAwarenessMonth amongst others
So the narrowboat adventure has started. I will be going through the 4 days of travel we did to get the boat to it’s home mooring and final destination! The first day we started off where we had bought it from which was Braunston Marina. This journey for us if you are travelling bu car … Continue reading The Narrowboat adventure…
Dear readers, Today’s subject is very close to my heart. Everyone has fears, some maybe about spiders and some maybe heights. Mine is about my condition and if it get’s worse or what will happen to me when I get older. Being 32 and already having so many issues does play on my mind for … Continue reading Fears of my condition