Hey readers, This last week has been the most difficult in a while. Not necessarily from a pain perspective, although that never helps. Just from the sheer inconvenience of not having a functioning bathroom! On Monday I took my dog Lilly to the vets for her boosters and then we went onto the Kennels. We … Continue reading Bathroom refit and it’s taking it’s toll
So mine and my husbands main plan for this year is to sell the house and buy a liveaboard Narrowboat! Sounds a little extreme but it really appeals living life in the slow lane. Continue reading Narrow boats, disability and life in the slow lane
So this week has been a trying one. I had an emergency GP appointment after having feeling nausea, dizziness and having palpitations on Monday. I called the NHS 111 service and they were concerned with my resting heart rate. I have been told that it’s extremely likely I have PoTs from an EDS specialist in … Continue reading Postural Orthostatic Tachycardia syndrome (PoTS) and a Birthday!
In the past I have done Blog’s and at the time I was very angry at the world. It took 11 years to get a diagnosis and the help I needed. I was back and forth with hospital and GP appointments and not getting anywhere. Then I found a GP who understood and was … Continue reading Lemonade from Life’s Lemons
Life with EDS can be extremely difficult however, I aim to keep a positive light on this subject and share my experiences of what I have personally found works and doesn’t work with management of this condition. Continue reading Hi and Welcome