This, amongst other questions are very difficult to answer. The usual answer you will get from me is ‘I’m OK thanks’. This doesn’t even come close to how I am but is the quickest and easiest answer I have. Living with pain and fatigue everyday is so difficult for people to comprehend. I do have … Continue reading How are you feeling today?
This month is #EDSAwarenessMonth. I will not forget the other conditions that suffer with similar issues to this however. There are many conditions that have the same problems with hypermobility. Hypermobile EDS is the main condition I suffer with and there are MANY other conditions that have heritable disorders of the connective tissue. Continue reading #EDSAwarenessMonth amongst others
Dear readers, Today’s subject is very close to my heart. Everyone has fears, some maybe about spiders and some maybe heights. Mine is about my condition and if it get’s worse or what will happen to me when I get older. Being 32 and already having so many issues does play on my mind for … Continue reading Fears of my condition
Leaving work due to ill health Continue reading Last Day
My latest #blog post. About the decision to leave work Continue reading Decision time
Good evening readers, Today I wanted to blog about communication and the tools that we can use to help others understand. Having an invisible illness, it can be very difficult to communicate to others how we are feeling or how much pain we are in. Overtime, I have been fortunate enough to have very understanding … Continue reading My communication tools