Dear wonderful readers, Firstly, HIIII! How the devil are you? I have been missing you and your lovely comments and likes on facebook, twitter etc 🙂 I will get my butt into gear soon lol! A little catch up with you all, I thought I would sit with a coffee and update you all on … Continue reading Coffee and a catch up ❤
This, amongst other questions are very difficult to answer. The usual answer you will get from me is ‘I’m OK thanks’. This doesn’t even come close to how I am but is the quickest and easiest answer I have. Living with pain and fatigue everyday is so difficult for people to comprehend. I do have … Continue reading How are you feeling today?
I hope everyone is keeping well with this weather we are having?? I honestly have struggled with this, my heart rate is all over the place and the boat is hotter inside than outside lol! Continue reading Preparation, preparation, preparation!
A few weeks ago, I had a pacing masterclass with Jo Southall who is an amazing Occupational therapist. Jo herself is a fellow bendy too, so she just gets it. I cannot rate her enough. Continue reading Pacing, a life style change
This weekend just passed, we took my best friend out on our floating home for a weekend away to see the scenes of the River Nene and spend some quality time together before she starts her new exciting job. Continue reading The aftermath of fun
Just a quick few snaps from around the marina we are moored at. Tomorrow we head out for the day and take the in laws with us. Fingers crossed the river isn’t too high as we have had so much rain in a few days. I have finally been making time for crochet and self … Continue reading My world at the marina
This month is #EDSAwarenessMonth. I will not forget the other conditions that suffer with similar issues to this however. There are many conditions that have the same problems with hypermobility. Hypermobile EDS is the main condition I suffer with and there are MANY other conditions that have heritable disorders of the connective tissue. Continue reading #EDSAwarenessMonth amongst others