I hope everyone is keeping well with this weather we are having?? I honestly have struggled with this, my heart rate is all over the place and the boat is hotter inside than outside lol! Continue reading Preparation, preparation, preparation!
A few weeks ago, I had a pacing masterclass with Jo Southall who is an amazing Occupational therapist. Jo herself is a fellow bendy too, so she just gets it. I cannot rate her enough. Continue reading Pacing, a life style change
This weekend just passed, we took my best friend out on our floating home for a weekend away to see the scenes of the River Nene and spend some quality time together before she starts her new exciting job. Continue reading The aftermath of fun
Just a quick few snaps from around the marina we are moored at. Tomorrow we head out for the day and take the in laws with us. Fingers crossed the river isn’t too high as we have had so much rain in a few days. I have finally been making time for crochet and self … Continue reading My world at the marina
This month is #EDSAwarenessMonth. I will not forget the other conditions that suffer with similar issues to this however. There are many conditions that have the same problems with hypermobility. Hypermobile EDS is the main condition I suffer with and there are MANY other conditions that have heritable disorders of the connective tissue. Continue reading #EDSAwarenessMonth amongst others
So the narrowboat adventure has started. I will be going through the 4 days of travel we did to get the boat to it’s home mooring and final destination! The first day we started off where we had bought it from which was Braunston Marina. This journey for us if you are travelling bu car … Continue reading The Narrowboat adventure…
Friends and family and chronically ill Continue reading Chronic illness and life